429. The reality of chronic illness in your 20s ft. Nikki Lilly

Nikki Lilly, a long-time content creator and advocate, shares her journey of navigating life with a rare medical condition called AVM (Arteriovenous Malformation) since age six. This condition, which causes abnormal connections between arteries and veins, has necessitated 98 surgeries and frequent hospitalizations, profoundly shaping her relationship with her body and sense of autonomy. Beyond the physical challenges, she discusses the psychological toll of chronic illness, including the anxiety of living without stability and the necessity of EMDR therapy for trauma. She also reflects on the dehumanizing nature of social media, specifically the rise of AI-driven trends that edit her facial appearance, and her commitment to using her platform to advocate for face equality. Through her new podcast, "Live a Little," she seeks to foster genuine human connection and normalize the experience of living with a visible difference.