ELIZABETH BARNES: the minority body and the ethics of disability

This episode explores the philosophical perspectives on disability and health, featuring Elizabeth Barnes, a philosophy professor with Ehlers-Danlos Syndrome and author of "The Minority Body" and "Health Problems." Against the backdrop of her personal experiences and academic work, Barnes discusses the complexities of defining disability, distinguishing between mere differences and bad differences, and challenges the assumption that disability inherently leads to a lower quality of life. More significantly, the conversation addresses the potential gains associated with disability, such as altered perspectives and unique social experiences, while acknowledging the losses and struggles. As the discussion pivots to prenatal diagnosis and selective termination, ethical considerations regarding societal costs, benefits, and potential biases are examined. The dialogue culminates in a deeply personal reflection on Barnes' diagnosis of young-onset Parkinson's disease, revealing how philosophical analysis provided comfort and meaning, emphasizing the importance of relationships, joy, and prioritizing personal values in living well, even amidst health challenges. This exploration underscores the multifaceted nature of well-being and the potential for a flourishing life, irrespective of physical limitations.